At Kennedy Krieger, the Philip A. Keelty Center for Spina Bifida and Related Conditions serves children and adults with spina bifida, myelomeningocele (meningomyelocele), or myelodysplasia, as well as other related conditions of the brain and spine such as hydrocephalus, Arnold-Chiari malformation and tethered spinal cord syndrome. ● The estimated cost of lifetime care related to Spina Bifida for the 2, people living with Spina Bifida in Maryland ranges between $1,,, and $2,,, Among adults with MMC, only live independently as adults, accruing substantial costs for the lifetime care.
Spina bifida is a congenital malformation of the spinal cord and column that, until recently, was known chiefly as a pediatric disability. Due to advancements in medical, surgical, and rehabilitative care, the number of adults living with spina bifida is increasing. About half of people living with Spina Bifida in the United States are adults. For many years, the medical community has focused on providing care for children and offers many children’s clinics throughout the country. Unfortunately, there are not enough providers who are trained to provide care for adults living with Spina Bifida.
Spina Bifida in Maryland. 62 likes. Families living with Spina Bifida in Hagerstown, MD areaFollowers: First Maryland Disability Trust; Special Needs Planners in the State of Maryland; American Bar Association: Lawyer’s Guide to Working with clients who have special needs; Spina Bifida. Spina Bifida Association; How to Treat Spina Bifida; American Academy of Pediatrics; Spina Bifida Overview; Tourette Syndrome. Tourette Syndrome; 10 Strategies.
1st Place, Spina Bifida Investigative Research Award, 2nd World Congress on Spina Bifida Research and Care (Award Paper: Family Functioning, Self-Management, and the Trajectory of Psychological Symptoms in Emerging Adults with Spina Bifida). Gillette's adult services clinic serves teens and adults who have conditions that began during childhood and require lifelong specialty care. Whether you’re a teen or adult who has a disability or the parent of a teen or adult child, you can trust our expertise in treating the age-related effects of cerebral palsy, spina bifida, neuromuscular.